Ronan's Journey to the Moon
Welcome to Ronan's blog
Welcome to Ronan's blog
We are so thankful for the support of family and friends as we walk this uncharted path with our beautiful son. Ronan was diagnosed with alveolar capillary dysplasia (ACD), a rare congenital lung condition, at 3 1/2 weeks old. We lost Ronan's sister, Phoebe, to this condition just a year ago. The gift she gave Ronan was knowing that the only possible treatment for ACD is a lung transplant. We were able to pursue that path early enough to have Ronan transferred to St. Louis Children's Hospital, where the pioneering doctors were the first to use an artificial lung on a newborn. This "bridge to transplant" is the best chance of keeping Ronan stable enough long term to wait for a transplant. To follow Ronan's journey from birth, you can read his carepages (sign in and search for Ronanbushmunsonnicu). Join us in taking each new baby step with Ronan on his journey to the moon.
We are so thankful for the support of family and friends as we walk this uncharted path with our beautiful son. Ronan was diagnosed with alveolar capillary dysplasia (ACD), a rare congenital lung condition, at 3 1/2 weeks old. We lost Ronan's sister, Phoebe, to this condition just a year ago. The gift she gave Ronan was knowing that the only possible treatment for ACD is a lung transplant. We were able to pursue that path early enough to have Ronan transferred to St. Louis Children's Hospital, where the pioneering doctors were the first to use an artificial lung on a newborn. This "bridge to transplant" is the best chance of keeping Ronan stable enough long term to wait for a transplant. To follow Ronan's journey from birth, you can read his carepages (sign in and search for Ronanbushmunsonnicu). Join us in taking each new baby step with Ronan on his journey to the moon.